Our Son Trent was born with Duchenne Muscular Dystrophy (DMD), a rare and incurable disease affecting 1 in every 3500 boys born each year. This 100% fatal disease causes progressive muscle weakness that ultimately leads to life-threatening heart and lung complications. The average lifespan of a child suffering from DMD is mid-to-late 20s.

Trent attends therapy 3-4 times per week and that will only increase as he grows older. He is constantly visiting different doctors across the nation for the best treatment possible.

Powers Promise was created to promote awareness, educate others and partner with DMD organizations to help find a cure.

We thank you from the bottom of our hearts for your support!

Kimberly and Trevor Powers

Latest News & Events

6 months ago

Powers Promise

Today is #RareDiseaseDay - a global campaign on the last day of February, a month known for having a rare number of days, to raise awareness about rare disease and the impact on patients lives.

THANK YOU to our community for raising awareness on Duchenne muscular dystrophy, funding the fight to end Duchenne and giving HOPE to all those affected by this rare disease! We will not stop until we find a cure! #rarediseaseday #hisnameistrent #enduchenne
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6 months ago

Powers Promise

We are so grateful to the South Brunswick High School Wrestling team for supporting Gregory in his fight against Duchenne. The team sold awareness T-Shirts and raised over $2,000 that the Boldizar family so kindly directed to Powers Promise!

Thank you so much for the community awareness you all have created and for your generous donations. #hisfightismyfight
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6 months ago

Powers Promise

Save the Date! Our 4th Annual Volley For Duchenne Volleyball tournament is set for August 15th! Start putting your teams together now. 🏐 ... See MoreSee Less

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6 months ago

Powers Promise

A day in the life...

just a little glimpse into some of the things Trent has to encounter on any given day. Today it was casting for new braces to stretch his legs at night. And when I say new “braces” I mean these casts that were put on, cut off and assembled to work as removable casts to wear at night while he’s sleeping. Seems comfortable, right?

Look beyond the casting, saw and noise canceling headphones and notice Trent always ready to do what he needs to do. And it’s always with a smile (and some tick-tack-toe) no matter what! #mylittlesuperhero
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