Our Son Trent was born with Duchenne Muscular Dystrophy (DMD), a rare and incurable disease affecting 1 in every 3500 boys born each year. This 100% fatal disease causes progressive muscle weakness that ultimately leads to life-threatening heart and lung complications. The average lifespan of a child suffering from DMD is mid-to-late 20s.

Trent attends therapy 3-4 times per week and that will only increase as he grows older. He is constantly visiting different doctors across the nation for the best treatment possible.

Powers Promise was created to promote awareness, educate others and partner with DMD organizations to help find a cure.

We thank you from the bottom of our hearts for your support!

Kimberly and Trevor Powers

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6 hours ago

Powers Promise

Please consider supporting Powers Promise this #GivingTuesday. A donation of any amount is always greatly appreciated.

2020 has forced us to cancel all of our normal fundraising events, making it hard to raise the money needed to help support potential life saving research for the boys and men suffering from Duchenne Muscular Dystrophy. We need your help!
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2 months ago

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3 months ago

Powers Promise

🍷 One Hope Wine Fundraiser 🍷

Looking for a unique way to give back to Powers Promise? We are excited to partner with ✨One Hope Wine✨This company was built on the belief of giving back to causes and charities closest to each consultants’ heart.

By supporting this fundraiser, 10% of your purchase will be donated directly to Powers Promise! 💚 Because of your purchase we will be able to contribute towards helping researchers find a cure.

With the kids going back to school and now is the perfect time to restock your wine racks 🍾

We welcome you to browse through this fundraiser link and find your favorite wine. You can start filling your cart to give back by clicking here:

🛒 www.onehopewine.com/event/61374
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3 months ago

Powers Promise

Today is WORLD DUCHENNE DAY. The significance of the date represents the 7th day of the 9th month...for the 79 Exons in the dystrophin gene. Just one mistake in this large gene causes the muscles to stop producing dystrophin and the result is Duchenne.

🎈🎈September 7th is World Duchenne Awareness Day.
On this day, we raise awareness for Duchenne Muscular Dystrophy around the globe 🌎.

Duchenne muscular dystrophy (DMD) is a rare X-linked recessive genetic disorder, caused by mutations in the dystrophin gene which encodes the protein dystrophin. 🧬 With Duchenne, the body doesn't make dystrophin. Without dystrophin, muscle cells become damaged and weaken. The disorder is usually inherited but can occur when the gene mutates spontaneously. (This means it can happen to any family, as it did to mine.)

Duchenne causes progressive weakness and loss of muscle mass in the skeletal muscles and the heart muscle. This muscle weakness begins to show in early childhood, with diagnosis usually between ages 4-6 years old. Most children will need to use a wheelchair by their early teens and others a little more early ♿ Heart and breathing problems will also lead to serious, life threatening complications. 💔 The most common cause of death is heart failure from cardiomyopathy.

Children with Duchenne are more likely to have conditions affecting the brain, such as mental health, learning, or seizure disorders. The lack of dystrophin is believed to affect the ability of neurons to connect properly and share information in the brain. This causes challenges with important brain functions such as attention, memory, learning, speech, and intellectual ability. Children with Duchenne are more likely to have the following:
Obsessive Compulsive Disorder
Selective Mutism

Today there is still no cure. We won’t stop until we have one!🎈🎈🎈🎈

#EndDuchenne #WDAW2020 #ppmd #hisnameistrent
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