Our Son Trent was born with Duchenne Muscular Dystrophy (DMD), a rare and incurable disease affecting 1 in every 3500 boys born each year. This 100% fatal disease causes progressive muscle weakness that ultimately leads to life-threatening heart and lung complications. The average lifespan of a child suffering from DMD is mid-to-late 20s.

Trent attends therapy 3-4 times per week and that will only increase as he grows older. He is constantly visiting different doctors across the nation for the best treatment possible.

Powers Promise was created to promote awareness, educate others and partner with DMD organizations to help find a cure.

We thank you from the bottom of our hearts for your support!

Kimberly and Trevor Powers

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3 weeks ago

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1 month ago

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1 month ago

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Tomorrow, September 7, is World Duchenne Awareness Day. Duchenne Muscular Dystrophy is a progressive, muscle wasting condition that at this time has no cure (we’re working on that). This red balloon honors Trent and all the other boys affected by DMD. It is also in loving memory of those that are no longer with us. ⠀
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One of the most amazing lessons this has taught me is to not let a label limit who we are or where we’re going. And if you can muster enough strength, maybe even use that label to empower yourself to see how far you can reach, how big you can dream. ⠀
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Trent might be labelled with DMD but we won’t let that limit or define him. He amazes me every single day and I have said “I never knew if I would see this day@ so many times. This year alone he is running faster, jumping, dressing himself head to toe, wrestling with his dad, writing his name and swimming alone! ⠀
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We celebrate all of these things, not just the first time they happen, but almost every single day, every single time they happen. You see, because DMD is progressive, we don’t know how much longer he will be able to do these things. But we don’t let that stop us from embracing new experiences, exposures, and challenges. We try, and try, and try again. Without pressure, but with excitement and zest. And that is what makes Trent so special. He never stops trying.
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People might think I’m looking at life through rose-colored glasses. To them I say, “Thanks. They were a gift from my son,Trent”.

Please consider taking a moment to flood social media with a red balloon, share a fact or a story about DMD, wear red and help us raise awareness 🎈

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1 month ago

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2 months ago

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We had an amazing turnout today at The Row! For the 2nd year CrossFit Morristown has graciously hosted this fantastic event to support Powers Promise and our cause. This year they raised over $11,000 in a morning filled with an amazing vibe of competition and sportsmanship. People pushed themselves to their limits to show support for those who can’t. It is such an honor to be connected to such a great place and to have so many wonderful people in our corner! 🛶 #cfmotown #crossfit #therow #rowmarathon #powerspromise #endduchenne ... See MoreSee Less

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