Latest News & Events
Another big thanks to William Penn Bank for helping to sponsor our upcoming 5K, 5miler and Family Walk. ![]()
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Race registration closes October 13th, use the link below to register today!![]()
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raceroster.com/events/2021/37066/ryans-quest-powers-promise-rq5
Not a runner?? That’s ok! We have a great option for you at our upcoming event! ![]()
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Sign up for our FAMILY WALK and enjoy a leisurely 1 mile stroll around beautiful Mercer County Park. 🌳![]()
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raceroster.com/events/2021/37066/ryans-quest-powers-promise-rq5![]()
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Bring the kids and make it a family affair 👨👩👧👦![]()
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By signing up for any of our events on 10/17 you are helping not one, but TWO organizations to support life changing research for our son’s who suffer from Duchenne Muscular Dystrophy. ![]()
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As always we appreciate the support of our communities and can’t wait to see you all there!
Thank you, NJM Insurance Group for your generous sponsorship of our upcoming 5K, 5Miler and Family Walk! ![]()
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Race day is almost here, register today! ![]()
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raceroster.com/events/2021/37066/ryans-quest-powers-promise-rq5
Today is WORLD DUCHENNE DAY. The significance of the date represents the 7th day of the 9th month...for the 79 Exons in the dystrophin gene. Just one mistake in this large gene causes the muscles to stop producing dystrophin and the result is Duchenne. ![]()
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🎈🎈September 7th is World Duchenne Awareness Day.![]()
On this day, we raise awareness for Duchenne Muscular Dystrophy around the globe 🌎. ![]()
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🎈🎈WHAT IS DUCHENNE? ![]()
Duchenne muscular dystrophy (DMD) is a rare X-linked recessive genetic disorder, caused by mutations in the dystrophin gene which encodes the protein dystrophin. 🧬 With Duchenne, the body doesn't make dystrophin. Without dystrophin, muscle cells become damaged and weaken. The disorder is usually inherited but can occur when the gene mutates spontaneously.![]()
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🎈🎈HOW IS THE BODY AFFECTED BY DUCHENNE?![]()
Duchenne causes progressive weakness and loss of muscle mass in the skeletal muscles and the heart muscle. This muscle weakness begins to show in early childhood, with diagnosis usually between ages 4-6 years old. Most children will need to use a wheelchair by their early teens and others earlier ♿ Heart and breathing problems will also lead to serious, life threatening complications. 💔 The most common cause of death is heart failure from cardiomyopathy.![]()
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🎈🎈DUCHENNE'S EFFECT ON THE BRAIN...![]()
Children with Duchenne are more likely to have conditions affecting the brain, such as mental health, learning, or seizure disorders. The lack of dystrophin is believed to affect the ability of neurons to connect properly and share information in the brain. This causes challenges with important brain functions such as attention, memory, learning, speech, and intellectual ability. Children with Duchenne are more likely to have the following:![]()
ADHD ![]()
Autism ![]()
Dyslexia ![]()
Obsessive Compulsive Disorder ![]()
Selective Mutism![]()
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Today there is still no cure. We won’t stop until we have one!🎈🎈🎈🎈![]()
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#EndDuchenne #WDAW2021 #ppmd #hisnameistrent