Latest News & Events
Today is WORLD DUCHENNE DAY. The significance of the date represents the 7th day of the 9th month...for the 79 Exons in the dystrophin gene. Just one mistake in this large gene causes the muscles to stop producing dystrophin and the result is Duchenne. ![]()
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🎈🎈September 7th is World Duchenne Awareness Day.![]()
On this day, we raise awareness for Duchenne Muscular Dystrophy around the globe 🌎. ![]()
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🎈🎈WHAT IS DUCHENNE? ![]()
Duchenne muscular dystrophy (DMD) is a rare X-linked recessive genetic disorder, caused by mutations in the dystrophin gene which encodes the protein dystrophin. 🧬 With Duchenne, the body doesn't make dystrophin. Without dystrophin, muscle cells become damaged and weaken. The disorder is usually inherited but can occur when the gene mutates spontaneously.![]()
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🎈🎈HOW IS THE BODY AFFECTED BY DUCHENNE?![]()
Duchenne causes progressive weakness and loss of muscle mass in the skeletal muscles and the heart muscle. This muscle weakness begins to show in early childhood, with diagnosis usually between ages 4-6 years old. Most children will need to use a wheelchair by their early teens and others earlier ♿ Heart and breathing problems will also lead to serious, life threatening complications. 💔 The most common cause of death is heart failure from cardiomyopathy.![]()
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🎈🎈DUCHENNE'S EFFECT ON THE BRAIN...![]()
Children with Duchenne are more likely to have conditions affecting the brain, such as mental health, learning, or seizure disorders. The lack of dystrophin is believed to affect the ability of neurons to connect properly and share information in the brain. This causes challenges with important brain functions such as attention, memory, learning, speech, and intellectual ability. Children with Duchenne are more likely to have the following:![]()
ADHD ![]()
Autism ![]()
Dyslexia ![]()
Obsessive Compulsive Disorder ![]()
Selective Mutism![]()
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Today there is still no cure. We won’t stop until we have one!🎈🎈🎈🎈![]()
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#EndDuchenne #WDAW2021 #ppmd #hisnameistrent
Tomorrow, September 7, is World Duchenne Awareness Day. Duchenne Muscular Dystrophy is a progressive, muscle wasting condition that at this time has no cure (we’re working on that). This red balloon honors Trent and all the other boys affected by DMD. It is also in loving memory of those that are no longer with us. ⠀![]()
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One of the most amazing lessons this has taught me is to not let a label limit who we are or where we’re going. And if you can muster enough strength, maybe even use that label to empower yourself to see how far you can reach, how big you can dream. ⠀![]()
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Trent might be labelled with DMD but we won’t let that limit or define him. He amazes me every single day and I have said “I never knew if I would see this day so many times. This year alone he completed a ropes course, spent hours tubing, went white water rafting and is even able to hop on one foot- just to name a few. ![]()
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We celebrate all of these things, not just the first time they happen, but almost every single day, every single time they happen. You see, because DMD is progressive, we don’t know how much longer he will be able to do these things. But we don’t let that stop us from embracing new experiences, exposures, and challenges. We try, and try, and try again. Without pressure, but with excitement and zest. And that is what makes Trent so special. He never stops trying.![]()
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People might think I’m looking at life through rose-colored glasses. To them I say, “Thanks. They were a gift from my son,Trent”.![]()
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Please consider taking a moment to flood social media with a red balloon, share a fact or a story about DMD, wear red and help us raise awareness 🎈![]()
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www.powerspromise.org
What an amazing night! 🍻![]()
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We are overwhelmed by the number of people who came out to support our family last night. We know we have a village but it’s been so long since we have been able to gather and it’s incredible to see how our village has grown. ![]()
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💚💚 Thank you all for not only supporting this super cool fundraiser but for showing our family so much love. It truly means the world to us. ![]()
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Old Hights Brewing Company- thank you! We are so grateful that we were chosen to be one of your donation beers. What you do for your community is amazing. We can’t thank you enough for your generosity and for allowing us to take over the brewery last night. ![]()
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🚨For those of you still planning buy beer: ![]()
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We completely sold out of the cans! They still have some on tap so growlers are a good option if you want some to go.
Come out to Old Hights Brewing Company tomorrow!🚨DONATION BEER 🚨![]()
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Try some TOMORROW! Open 5-9![]()
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👉Available On Tap and in four pack 16oz cans To Go!👈![]()
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💚Powers Promise💚![]()
Pale Ale New England / Hazy![]()
6.5% ABV![]()
This hazy, juicy pale ale was dry hopped with Strata and Cryo Pop hops, leading with flavors of strawberry, passion fruit, peach, grapefruit, mango, pineapple and pine. Specially brewed to benefit Powers Promise, an organization created to promote awareness, educate, and work to find a cure for Duchenne Muscular Dystrophy (DMD). ![]()
Check out @powerspromise and learn more about their story.![]()
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☀️Weekend Taproom Hours☀️ ![]()
▪️Weds 5-9![]()
▪️Thurs 5-9![]()
▪️ Fri 5-9 ![]()
▪️Sat 12-9 ![]()
▪️Sun 12-7![]()
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🚨THIS WEEK🚨![]()
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🎶Live Music 🎶![]()
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Anker![]()
Saturday 8/13, 5:00-8:00![]()
Anker is a solo acoustic guitar rock act. His music is alive and rooted in the finest Americana based pop/rock.![]()
@ankergram ![]()
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Fridge is packed with 16oz four packs of your favorite Old Hights styles!![]()
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All Beer Styles Available ON TAP as well as in 16oz four packs of cans, crowlers, & growlers TO GO!![]()
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All tables and firepits are first come first serve in our taproom and beer garden ! Stop by any time!![]()
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Visit our website to SHOP, view our current MENU, & get more info about upcoming EVENTS!![]()
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#jerseybeer #njcraftbeer #njbrewery #drinklocal #drinklocalbeer #mercercountynj #hightstownnj #centraljersey #oldhights #njcb #ipa #brewery #craftbeer #beerstagram #craftbeers