About Duchenne
The most common fatal genetic disorder diagnosed in childhood.
Understanding the disease behind our mission.
Duchenne muscular dystrophy is a progressive muscle disorder that causes loss of muscle function and independence. Because the Duchenne gene is found on the X chromosome, the disorder manifests primarily in boys, and affects families of every race and culture. It can occur during any pregnancy, regardless of family history — nearly 35% of cases are caused by random, spontaneous genetic mutation. There are approximately 15,000 boys and young men living with Duchenne in the United States today.
The facts
- The #1 most common fatal genetic disorder diagnosed in childhood.
- Affects 1 in every 3,500 live male births.
- Most children aren't diagnosed until 3–5 years of age.
- Life expectancy is usually 20–30 years old.
- There are 20,000 new cases each year worldwide.
- There is currently no cure.
Help us change these facts.
Your support funds the most promising research with the intent of improving life for Trent and all boys impacted by this disease.
— Kimberly and Trevor Powers